View From a Wheelchair: The Perfect Life

As I look up, I can’t fail but to notice my wheelchair. Tucked into a corner, still it sits predominantly in the room. This is my reality. I do not deserve more – nor do I deserve less.

Over the years, friends have  told me how unfair it seems to them that I have myotonic dystrophy. These kind words reveal at least two things about them: (1) they are sorry that I have to contend with a debilitating disease, and (2) because I had already had some tough times, I should not have to experience more troubles. I am grateful for their love. Still, it made me wonder. What does anyone deserve?

It has become increasingly difficult not to consider the big picture. Our Western minds are geared to be positive and assumptive. History has been charitable to us. We have won wars, ruled over others as if we were benevolent dictators, and enjoyed a lifestyle unequaled in many parts of the world. Even our poor are not poor when compared to third-world countries. Not until 9/11 did we stop to think that maybe other countries could hate us.

Our self-assuredness and entitlement run deep in our souls. We tell ourselves that we are God’s elect. When troubles and suffering are experienced, some believe that we are being punished by God. Karma is at play. There are underlying assumptions here: good things happen to good people; bad things happen to bad people. We want justice. We want ours!

This concept of the perfect life can leave us feeling unfulfilled. We compare to our demise.  Our definition of what constitutes the good life can cause us to feel cheated. Do you think that if you work hard, are kind, and follow the rules, then you are guaranteed a wonderful life?

Why should we expect a certain outcome? Do we deserve anything? There are no guarantees. Nothing is fair. Nothing is perfect. There is no perfect spouse, child, job, home, country, or life.

You don’t need a perfect life to be happy.




Published by

Rose Wolfe (Living Free with disAbilities)

Let's get to the elephant first: I have myotonic dystrophy which defines my physical limitations, but it does not define me. Without the distraction of physical activities, I have found my passions: (1) Encouraging others to live more fully with fun, faith, and hope; (2) finding freedom in oil painting; (3) writing about my experiences; and (4) encouraging others to live more passionately. It is my belief that every person lives with at least one disability - for impairments are not limited to those with chronic illnesses. Many neurotypical people are psychological architects who have constructed enclosures in which they trap themselves. Mindsets, attitudes, and perceptions are fluid realities. Many of us have forgotten that it is possible how to live beyond our disabilities. Life may have challenges but faith and hope are within reach. I have made my choice: I am LivingFreeWithdisAbilities.

6 thoughts on “View From a Wheelchair: The Perfect Life”

  1. I read this while enjoying a delicious salad. I don’t deserve it, but I am thankful for it and the slathered bleu cheese intermixed.
    These are encouraging thoughts Rose. Thank you.

    Liked by 1 person

  2. Something I’ve been pondering over for a while too. But isn’t it unfair that even when you try your best, learn from your mistakes, make sure you don’t hurt people, work on yourself for becoming a better person and just simply try to be happy, obviously not asking for things to be perfect, shouldn’t happiness find you? Sorry for just spilling over my thoughts but shouldn’t good happen to you when you yourself work on being good person wholeheartedly?

    Liked by 1 person

    1. Well stated. I think that is the conundrum. Our assumptions drive our expectations. We don’t find happiness; we determine to be happy. Of course, not all the time. However, we develop character (strong, honest character) as we pass through our struggles. Many times, I have had to put aside desires with tears. Still, I have discovered the ability to be happy and content. Life is hard. We have the choice: victim, survivor, victor, or thriver. I chose to be a thriver.

      Liked by 2 people

      1. This is actually satisfying. It is by far the truth. Thank you for taking out time to reply. i don’t want to fall a victim to timely struggles. i’m not sure if i’ll be victorious in this struggle but i know i am strong and i can thrive simple problems in life when you can fight major ones. Thanks Rose. Really helpful!

        Liked by 1 person

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