A Letter to U2: Bono, Edge, Adam, & Larry (Sammy)

Sammy penned the following as he faces the potential of a third brain surgery:

Brain Storming

Dear Bono, Edge, Adam, and Larry,

I’m writing to you from my bed at Stanford Hospital, not to sound dramatic, but it feels very fitting that I should start my letter here.

When I was fifteen I had a tumor the size of a small orange removed from my brain.  I’m here now, thirteen years later waiting to see if I’m a candidate for a third surgery, this time to stop my seizures.

Before every appointment, before MRI, I went to you to help me prepare myself for what was to come.  Whenever my mom hears you on repeat she knows where I have gone in my mind.

My siblings, 12 and 14 years older, started listening to you in high school, so naturally, I started listening to you as a toddler.  You became my comfort, my reminder of my sister after she left for college.  You were my…

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Rose Wolfe (Living Free with disAbilities)

Let's get to the elephant first: I have myotonic dystrophy which defines my physical limitations, but it does not define me. Without the distraction of physical activities, I have found my passions: (1) Encouraging others to live more fully with fun, faith, and hope; (2) finding freedom in oil painting; (3) writing about my experiences; and (4) encouraging others to live more passionately. It is my belief that every person lives with at least one disability - for impairments are not limited to those with chronic illnesses. Many neurotypical people are psychological architects who have constructed enclosures in which they trap themselves. Mindsets, attitudes, and perceptions are fluid realities. Many of us have forgotten that it is possible how to live beyond our disabilities. Life may have challenges but faith and hope are within reach. I have made my choice: I am LivingFreeWithdisAbilities.

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