When I read the following post, I identified with the adjustments we make when first diagnosed with a chronic illness. Her storytelling skills will draw you into her experience. Hope you enjoy it as much as I did.
I have never heard of charcot marie tooth until my son was diagnosed with it approximately ten years ago. I always knew something was “wrong”. He was clumsy and fell often but i thought he was just growing into himself. One day in second grade, his teacher called me. She was screaming at me and asking me what is “wrong with your son?” “Doesn’t he realize he walks into everybody?” “I can’t have this in my class”. She basically went on a screaming tirade about my son. I hung up both so angry at her words and they way she spoke about my son that I wanted to just march up to the school and get her fired and then kick her ass. But I didn’t. I took a few deep breaths and remained calm. After a ton of research I had him tested at a local hospital. They did a myriad…
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The rePurposed Life 