I am going to net it out. No extraneous words. No gentle approach. My disease is not the result of my belief or unbelief. Period.
There is a subset of people who think that they have a special insight into my disease process. They are not part of the medically trained, and they do not have myotonic dystrophy. In fact, they don’t live with, nor are closely related to, anyone who has a chronic illness.
What they do have is an inordinate belief in themselves. They are ordinary people who think they have special wisdom Maybe they do, but I’m not buying it.
If they do have special wisdom, then why are they so obtuse? Instead of considering the harm they are causing, they speak their truth as if they were imparting an here-to-fore untapped resource. They single out the weak and sick. We, who are already fighting against our diseases, must also have to hear how it is our fault. Ultimately, we are the cause of our suffering.
I am on a rant today!
Imagine being told that your height is the result of your unbelief in the power of positive thinking or the result of your childhood. Yes, I did just say that.
A couple of years ago, I was blindsided by a woman who approached me with her special knowledge. If I would only open myself up to let the Supreme Being (her god) heal me, she admonished.
“Your childhood is holding you back,” she emphasized, “Your body is being traumatized by negative parenting.”
Somehow, she had decided that she knew the cause of my disability.
What she didn’t know was that I have myotonic dystrophy and that it is a genetic disease. Her lack of knowledge didn’t stop her, though. Her special insight had revealed exclusive divination to her. She was only the messenger, and I needed to heed her message. She was adamant and convinced. Oh, there was not a doubt in her mind. This wisdom was so rare that I needed her to tell me.
This was not an isolated event. Strangers and friends(?) all feel at liberty to reveal to me how I can be healed if only I believe in whatever they believe. Oh, of course, I also have to believe that they are in possession of revelations.
The latest experience occurred just a few days ago. Someone I have known for years sent me an email in which she told me that she, too, had received a special revelation. Interestingly, her message was vastly different from the woman I mentioned above (and the others that have approached me over the years). In the email, my friend told me that I needed “just to believe” that there was no such thing as disease. If I could just un-believe in the reality of illness, then I would not have myotonic dystrophy. Her reality is the reality.
My counsel to all that wish to share a truth: Make sure it is the truth and not a truth. Second, seek a second opinion about that truth.
To all the special messengers: If your words are dishonoring, disrespectful, and disheartening, keep your message to yourself. Period.